USEFUL LINKS

This page contains a list of links to other relevant organisations.  It is not a definitive list and we would welcome contributions from anyone who finds other links that may be useful. Just send the information in and we will up date our list.

If you wish to link to us please feel free to use any of the logo's from the downloads section.

NATIONAL DETAILS – BRAIN/BRAIN TUMOUR SPECIFIC

SAMANTHA DICKSON BRAIN TUMOUR TRUST
Heather – Support Co-ordinator

www.braintumourtrust.co.uk

0845 130 9733

Astro fund
Fund research & offer information, inspiration and hope to those affected by low-grade brain tumours

www.astrofund.org.uk/

info@astrofund.org.uk
01485 572767

HAMMER OUT
Ann – Support Co-ordinator

www.hammerout.co.uk
01454 414 355

BRAIN TUMOUR ACTION

(0131) 466 3116

www.braintumouraction.org.uk

BRAIN TUMOUR UK

(0845) 450 0386

www.braintumouruk.org.uk

BRAIN TUMOUR RESEARCH

www.braintumourresearch.org
01296 733011

BRAIN AND SPINE FOUNDATION (HEADSTRONG for children)

(0808) 808 1000

www.brainandspine.org.uk

NEUROSUPPORT

(0151) 298 2333

www.neurosupport.org.uk

ASSOC OF NEURO-ONOCOLOGY NURSES

(0131) 537 2656

shanne.mcnamara@luht.scot.nhs.uk

BASIC (Brain and Spinal Injury Charity)

S. Buckley (0870) 750 000

www.basiccharity.org.uk

INTERNATIONAL BRAIN TUMOUR ALLIANCE (IBTA)

www.theibta.org

BRAIN TUMOUR RESEARCH CAMPAIGN

(0208) 601 2402

wendy@wayahead-btrc.org

ANDREAS’S GIFT

(01274) 785092

crobertson@emeraldinsight.com

HEADWAY

0115 924 0800
0808 800 2244
THE NATIONAL BRAIN TUMOR SOCIETY (USA)
BRAINTRUST
TONY MURPHEY
Co-ordinator BT Support
The Walton Centre
Neurology and Neurosurgery NHS Trust
Brain Hospice


NATIONAL DETAILS – CANCER SPECIFIC

MACMILLAN CANCER SUPPORT

0808 808 2020

cancerline@macmillan.org.uk 

CANCER BACKUP

(0808) 800 1234

www.cancerbackup.org.uk

MARIE CURIE CANCER

(0207) 599 7777

www.mariecurie.org.uk
MIRIAM CHARITABLE TRUST (18-35)

(01273) 403 525

www.miriamtrust.org.uk

CANCER RESEARCH UK

(0207) 242 0200

www.cancerresearchuk.org


NATIONAL DETAILS CHILDREN – BRAIN/CANCER SPECIFIC

CHILDREN’S BRAIN TUMOUR RESEARCH CENTRE

(0115) 951 3724

Emma.pearson@nottingham.ac.uk

ALI’S DREAM

(0208) 863 6068

info@alisdream.org.uk

ELLIE SAVAGE MEMORIAL TRUST 

(01502) 539 509

elliesav@hotmail.com

NICOLA’S FUND

0845 367 2504

www.nicolasfund.co.uk

CLIC-SARGENT

 

0800 197 0068

www.clicsargent.org.uk
helpline@clicsargent.org.uk

NATIONAL ALLIANCE OF CHILDHOOD CANCER PARENT ORGANISATIONS

01785 603763

www.naccpo.org.uk
ro@naccpo.org.uk

CONTACT A FAMILY

0808 808 3555

www.cafamily.org.uk
infor@cafamily.org.uk

THE CHILD BRAIN INJURY TRUST

0845 601 4939

www.cbituk.org
helpline@cbituk.org
CEREBRA
0800 3281159

www.cerebra.org.uk
STARLIGHT FOUNDATION
020 743 1642

www.starlight.org
RAINBOW TRUST
CAPTAIN CHEMO’S ADVENTURES
TEENAGE CANCER TRUST
HELP ADOLESCENTS WITH CANCER
0161 688 6244

www.hawc-co-uk.com
THE KATIE TRUST
THE NORTH OF ENGLAND CHILDREN’S
CANCER RESEARCH FUND
PEDIATRIC BRAIN TUMOR FOUNDATION (USA)
GAPSLINE

0845 130 3683

www.gaps.uk.com


REGIONAL GROUP DETAILS – BRAIN TUMOUR SPECIFIC

Middlesborough

Brain Tumour Support and Information Group

(01642) 854347

Newcastle

Brain Tumour Support Group

(0191) 233 6161

Carlisle

Brain Tumour Support Group

(01228) 561257

London

Brainteasers

(0207) 346 4151

Sutton

Support Group for people with Brain Tumours

(0208) 661 3038

South East UK
Hartley Wintney

Samantha Dickson Brain Tumour Trust

(0845) 130 9733

Maidstone Kent

Headstart

(01342) 414493

Sussex

Brain Tumour Support Group

(01403) 263719

South West UK
Bristol

Hammer Out

(01454) 414355

Belfast

Brain Waves

(0282) 588 1397

Coventry

Brain Tumour Support Group

(0247) 696 5326


WEST MIDLANDS – BRAIN/CANCER/CARERS USEFUL CONTACTS

Macmillan Neuro-oncology Clinical Nurse Specialist

0121 472 1311 x8663
Neuro-oncology
Queen Elizabeth Hospital

Macmillan Neuro-oncology Clinical Nurse Specialist

0247 696 5326
Neuro-sciences
Walsgrave Hospital

Linda Hewkin
Cancer Care

Newcross Hospital
Wolverhampton

Sarah Edwards
Worcestershire Carers Assoc.

01905 26500

mail@carersworcs.org.uk

Primrose Hospice

 

01527 871051
St Godwalds Road
Bromsgrove

www.primrosehospice.org

Kemp Hospice
(community Macmillan)

01562 861217
Kemp House Trust
Kidderminster

St. Richards Hospice

01905 763963
Worcester

Acorns Children’s Hospice

01905 619677

jane.hartnell@acorns.org.uk

CONTACT A FAMILY

0121 415 4624

westmids.office@cafamily.org.uk
HEADWAY
Paediatric Macmillan Neuro-Oncology Team,
Birmingham Children’s Hospital
0121 333 8687
THE SOCIETY OF PARENTS OF CHILDREN WITH CANCER (SPoCC) Birmingham Children’s Hospital.

WORCESTERSHIRE CARERS UNIT

0800 389 2896

carers@worcestershire.gov.uk

OTHER ORGANISATIONS

CARING BRIDGE
EQUIP
www.equip.nhs.uk
An NHS website which signposts members of the public to useful health
and social care websites that have been quality-checked and has a
directory of over 4200 support groups and services both national and
local to the West Midlands and checked regularly.
NATIONAL SOCIETY FOR EPILEPSY
LIST OF COUNSELLORS

This site aims to provide a huge counselling support network, enabling those in distress to find a counsellor close to them and appropriate for their needs. This is a free, confidential service that will hopefully encourage those in distress to seek help.

www.counselling-directory.org.uk

Leander Walton

Prospect Physio: Nurological Physiotherapy & Rehabilitation

St Johns Road,
Stourport,
DY13 9DS

Tel: 01299 82628, Mob: 07930 305540

www.prospectphysio.co.uk

BEREAVEMENT

WINSTON’S WISH
EDWARD’S TRUST
0121 456  4838

www.edwardstrust.org.uk
NOAH’S ARK TRUST
THE WAY FOUNDATION
CRUSE BEREAVEMENT CARE

HOLIDAY/WISH MAKING - CHILDREN

YOUTH CANCER TRUST HOLIDAYS
DREAMFLIGHT
CHRISTIAN LEWIS TRUST
RAY OF SUNSHINE
WHEN YOU WISH UPON A STAR

WISH MAKING - ADULT

THE WILLOW FOUNDATION
THE HONEYROSE FOUNDATION

 
Contact us:
E-mail: info@wbtsg.org
Telephone: 0780 4820351